Friday, April 4, 2008

Brooklyn had an ambulatory EEG scan done for 24 hours to see if we could determine whether or not the staring spells she is having are seizures. What a terrible couple of days for both of us. When the electrodes were being glued onto her head she screamed harder than I've ever heard her cry before. It was heartbreaking to hear her so upset. They wrapped her head up with gauze and tape and sent us home with the machine in a little backpack. That night all she did was cry, I think we (as in me and B, course Daddy was snoring away) may have slept a total of 2-3 hours. I'm sure she was so uncomfortable and she certainly let me know it! Having them removed was just as bad but much quicker thankfully. The glue is still stuck all through her hair and looks like a bad case of dandruff. They recommended I brush through her hair with a fine toothed comb which of course makes her cry so I'm not going to bother. We got quite a bit of it out yesterday, the rest will just have to work its way out. I *think* we were able to catch a few spells but since they only last 10-15 seconds unless my eyes were on her constantly they were easy to miss. The whole scan will be read though so even if I wasn't able to push the button quick enough to mark the spell it will still be detected. I am not fond of the neurologist here in Maine and he will be reading the EEG and then faxing the info to Boston. I asked that the whole scan rather than just his report be faxed that way her Neurologist that we see at Children's can see the scan for herself. He is also off today so we won't learn the results until next week.

I snapped a few pictures of her while she was sleeping. That only lasted about an hour. :(






She also had her 15 month appointment yesterday afternoon. Her pediatrician was very happy with the progress she has made. She was 23.5 lbs, 32" long and her head was 18 inches. She agreed to write another letter to our insurance to try and sway them to cover our trips to Boston, if not, we will be paying for them ourselves. She had three shots and of course cried but she was fine soon afterwards. She slept so good last night, was in bed by 7:00 and slept until 4:30 this morning! She was awake for about 30 minutes and fell back to sleep. Poor girl has had a rough couple of days, I hate putting her through so much. :(

9 comments:

Kitty said...

I can't blame you for not trusting the neuro in Maine at all.Especially since half of what he said to you the other neuro in Boston scoffed at! I'm crossing my fingers for you both!Poor baby.

Karen said...

I'm so glad B slept well last night. I know all this will be worth it in the end!! Keep us posted about the EEG results!

Amber said...

What a little angel I just want to pick her up and snuggle her. I also wanted to let you know I love your header it came out great!

Rebecca said...

The POOR BABY! :( That's no fun at all. :(

Kittilicious said...

ditto to what everyone else said... but I just have to say that she looks so sweet & precious in those pictures!

Minilegs said...

it sucks to see any babies having go through all that crap. I hope they can figure out some of what is going on so she doesn't have to keep testing!

AnnD said...

Awwwww! We love you Brooklyn!

Secret Agent Mama said...

Awwww poor little B. She's in my thoughts and prayers, Amy.

Sarge Charlie said...

wow, I am happy that they are ok