Tuesday, March 11, 2008

"We are lucky," my husband said to me this weekend. Curious as to what he meant I turned to him to see his eyes welled with tears. Our local radio station was raising money to benefit The Barbra Bush Children's Hospital where B stayed for 5 days in October. The families of the children were sharing their stories on the air and he had been listening to them while working in the garage. Many of the children were/are very sick, much sicker than B. One mother even talked about having to make the heartbreaking decision to take her child off of life support. I know I spend a fair amount of time feeling sorry for myself and for B and for everything we will have to endure in the years to come, but it could be so much worse. At that moment I realized Dale is right, we are lucky. Instead of focusing on the child Brooklyn will never become, I am going to make sure she reaches her full potential and becomes the person that God intended her to be. Instead of feeling down after reading the simple milestones that are her goals for the upcoming months, I am going to celebrate each and every milestone she's worked so hard to reach, because even those carry the fullest of meaning. Instead of worrying about the future and all of the uncertainties, I am going to embrace this journey we are on, as emotional and challenging as it may be. I am going to take one day at a time, one step at a time and try to be positive. Brooklyn is a beautiful little girl and her smile warms my heart. She has taught me patience, perseverance, and an appreciation for life that I'd never had before. She is happy and thriving and despite her imperfections my love for her is unconditional. I should be thankful, and I am.

For those of you that don't know, we are going down to Boston again on the 17th for an appointment with a Neurologist.

5 comments:

Kitty said...

I think B has a lot of surprises in store for everyone!! I think she's capable of so much!!!

kacey said...

You know, that's a great attitude to take! I wish you well with your journey with B.

Jerinda said...

I said what I feel on SMW, but wanted to let you know again that B is amazing and so are you and Dale for realizing that she's perfect no matter what.

Karen said...

I also already posted on SMW, but wanted to give you a *big hug* and tell you how much I admire your strength as a woman and a mother.

AnnD said...

I <3 you!! Such an amazing post! Like Kitty said, I just have a feeling that Miss B is going to do just fine. She might be starting a behind the rest of the group at the start of the race, but she's tough! She's strong and she's got great parents! She'll do great things!